Charlotte CFS/ME/FM Support Group Newsletter
for August 2, 2010
Hi All,
NOTE: Please try to get a subscription to the Co-cure articles from which I get much of my info for the newsletters. There may be articles of importance to you that I either missed or intentionally did not include. Just go to www.co-cure.org, look to the top of the page on the LEFT side and you'll see "free subscription" - click on that.
Then you have many options. Unfortunately, you'll have to read all the info to decide for yourself what you what to sign up for. They do explain the default subscription should you do nothing but include your email address, etc. If you are not happy with what you receive, there are email addresses you can email to for extra help. They understand that some of us have cognitive issues - some more than others. Everyone at co-cure is a volunteer and is also sick so are very helpful.
I choose the digest as I don't wish to receive every article separately. I get my digest of co-cure articles each morning and have the day to go thru it.
The August luncheon will be:
Thursday, August 19th; 1:30PM, at Panera Bread, 7510 Pineville Matthews Rd. Charlotte. It is across the street (Rt. 51) from the Carmel Commons shopping center where the Fresh Market is. It is also very close to Dr. Lapp's office.
Correction to previous Panera location info: Panera's is not in the same shopping center with the Fresh Market. It is across 51 from the shopping center with the Fresh Market.
If you are coming from Matthews on Hwy 51 - you pass the intersection where Dr. Lapp's office is and keep going - Panera Bread is at the end of that little strip shopping center. Just past it on the right, you turn for parking after you pass Panera bread on the right.
Upcoming Meetings:
September 16 - Speaker - Dr. Lapp; Topic: "What's New" & Q&A
October 21 - Caregivers - Hope and help for those caring for ME/CFS/FM or other disabled patients. This is meant as a family event. Your family can be a spouse, any family member, or a good friend.
November 18 - Nutritionist Susan Chandler, Chiropractor, an expert on nutrition and familiar and sympathetic to CFS/FM patients and their special dietary needs.
December 16th - Christmas Party
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by Cort Johnson; Published on July 23rd, 2010 02:58 PM
International XMRV Workshop Lineup - Conference and Workshop lineups can tell you a lot about who's in and who's out. To read on: http://www.forums.aboutmecfs.org/content.php?4
Mission: dispelling the myths and providing the facts about CFS and fibromyalgia
http://cfs-facts.blogspot.com/
Beginners Guide to XMRV - Facebook
ProHealth E-Newsletter (Formerly ImmuneSupport) July 28, 2010
http://www.prohealth.com/eg/EG072810B/index.cfm?slvor=10411.1012002.0.1.0.86766&eid=nmhenson@aol.com
Topics Include:
- New Drug May Turn Off Chronic Pain
- News on Natural Depression Aids
- Proof IBS Symptoms are Real
News from ProHealth - "Maybe Its Fibro" Webinar August 12th, 2010
http://www.prohealth.com/me-cfs/blog/boardDetail.cfm?id=1399376
Cold cereal might beat a hot breakfast
Last Updated: 2010-07-01 14:04:36 -0400 (Reuters Health), by Rachael Myers Lowe
NEW YORK (Reuters Health) - You needn't feel guilty if you don't cook hot breakfasts for your kids. In a recent large study of children that compared breakfast-skippers, cereal eaters, and kids who had "other" breakfasts, the cereal-eaters came out on top for healthiest diets. For more:
http://www.reutershealth.com/archive/2010/07/01/eline/links/20100701elin005.html
From Dr. Lapp:
Dear Friend of Hunter-Hopkins,
Hunter-Hopkins Center
is evaluating an experimental medication for the treatment of Orthostatic
Hypotension (low blood pressure) and Neurally Mediated Hypotension (fainting) in
persons with Chronic Fatigue Syndrome.
Persons with CFS and either
very low blood pressure or fainting may be candidates for this study and
should contact Wendy Fallick,
Research Coordinator, at 704 543 9692.
Details of the study can be
found at the Clinical Trials website:
http://clinicaltrials.gov/ct2/show/NCT00977171?term=droxidopa&rank=6
Medicare Watch: Report Examines Efforts to Increase Enrollment in Low-Income Programs
http://www.medicarerights.org/issues-actions/medicare-watch.php
CURRENTS - Pain Management News and Research - July 2010
http://www.aapainmanage.org/pain_management_news/NEW_newsletter/email/currents0710.html
|
Hunter-Hopkins Center in Charlotte NC
is embarking on
a research
study of |
HEALTH CENTRAL: The Pain Connection
July 20, 2010
http://www.healthcentral.com/utils/newsweb/chronic-pain/news.html
US
Department of Veterans Affairs - GWS Update: New Research
http://www1.va.gov/opa/pressrel/pressrelease.cfm?id=3D1925
In a small but important study, scientists at the University of Liverpool discovered that treating the immune system of patients with Complex Regional Pain Syndrome (formerly called Reflex Sympathetic Dystrophy) can lead to a significant reduction in pain. The study, published in the February 2010 issue of the journal Annals of Internal Medicine, found that a single, low dose infusion of intravenous immunoglobulin (IVIG) significantly reduced pain in just under 50 percent of patients treated, with few adverse effects. To read more: http://www.healthcentral.com/chronic-pain/c/5949/116019/uk-scientists/?ic=6042
About.com CFS/FM E-Newsletter from Adrienne Delwo
http://specials.about.com/service/newsletters/chronicfatigue/1279911600.htm
Adrienne reports on many important issues for us. One very important article in this issue is regarding getting payment for your treatment.
Don't Miss Opportunity For the Latest Surveys
|
Join the ME-CFS Community at: http://cfsknowledgecenter.ning.com/
Then you can particpate in surveys such as those mentioned below and take advantage of all the latest information. |
Two items of particular interest have been added
to the ME-CFSCommunity.
If you have not yet taken both surveys, you are encouraged to do so at your earliest convenience to help advance research into this terrible affliction which has so dramatically affected all of our lives.
Kieran Hall, of Surrey, spearheaded development of the group and has laid the foundation for lively interaction between its members. More than a few interesting and exciting innovations are in the works as membership grows.
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Visit ME-CFSCommunity.com at: http://cfsknowledgecenter.ning.com/?xg_source=msg_mes_network
3-Minute Film on How a Young Man Inspired an entire Store
http://www.stservicemovie.com/miami?cm_mmc=MIAMI-_-NL-_-06.22.2010-_-STSRmov
Nancy Henson, Editor