Hi Everyone,

This is my interim newsletter for the month. But I also want to remind you of our next meeting, Thursday, November 18th, with Susan Chandler, a chiropractor who is very knowledgeable of nutritional issues.  So bring all your questions to what should be a very informative meeting.

As always, our meetings are at 7:00PM at Sharon Presbyterian Church ( 7-9PM), 0.8 miles south of South Park Mall; Sharon Presbyterian Church is located 0.8 miles south of SouthPark Mall on Sharon Road.  Use the entrance closest to the mall.  We meet in the Charles Little Activity Building (or CLAB), which is the brick building at the rear of the parking lot.  As you come into the building, go into the first door on your right. This is the Parlor of that building where we have our meetings.

For anyone who is new, our meetings generally wind down around 8:30pm so that we have time for refreshments and to talk with other members and/or the speaker for the evening. Remember no perfumes so as not to make those with MCS ill and no smoking anywhere on the church grounds. If during the meeting you feel you cannot sit and need to move about, please feel free to do so.

We know that with pain its impossible sometimes to sit with the increase in pain that comes from sitting too long. And feel free to bring your favorite pillow to be comfortable. Most of the chairs are folding and not always that comfortable. There are a few upholstered chairs and a couch.

So when you are getting uncomfortable, feel free to get a refreshment or to visit the information table or just walk around the room. The rest rooms are nearby - Kebbie, our leader, will address that during the intro time.

Since we all have memory issues, not only will I always send out a meeting reminder/newsletter a week before the meeting, but I'll send a simple meeting reminder the day before the meeting.  Hope this helps.

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NOTE:  Remember to go thru your calendar(s) to circle the 3rd Thursday of the month. We always have our meetings the 3rd Thursday of each month.

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Upcoming Meetings 

December 16th - Our annual Christmas Party (more details will be coming about that)

January 20th - Dr. Lapp will offer himself up for Q&A on any issue.

February - Dr. Laura Black will be talking about alternative/holistic medicine.

Stay tuned for more info on our 2010 meetings.

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Videos of the October 12, 13, & 14th CFSAC Meeting

These are great!  The technology being used provides us with a way to view each video in sections. You just click on the part you want to watch/listen to.  And to the right are the copies of the slides or documents and you can print them out.   There are 3 videos - one for each day of the meetings.  I haven't been able to watch them all but its exciting. 

 http://hhs.granicus.com/viewpublisher.php?view_id=5

XMRV retrovirus found in 62% of ME patients tested in Lillestrøm, Norway

 http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1010d&L=co-cure&T=0&F=&S=&P=1579

XMRV at the Tipping Point - A Tale of Two Conferences by Cort Johnson

http://www.forums.aboutmecfs.org/content.php?248-XMRV-at-in-the-balance-A-Tale-of-Two-Conferences-CFS

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Latest News - from Fibromyalgia Network

Treating One Area Can Reduce Overall Fibromyalgia Pain; by Kristin Thorson, Fibromyalgia Network Editor; Posted: October 25, 2010

We sent this link to you in advance of the October eNews Alert to remind you that each month we post breaking news on our website. We encourage you to visit the Latest News section each month to stay current on all the news.

The remainder of this month's eNews Alert will be sent to you at the end of the week. The October Fibromyalgia Network Journal is in the mail. If you have not received it already, rest assured it is on its way. Thank you for your patience.

Note from Nancy:  I would encourage anyone who is interested in the finest reporting on Fibromyalgia and any related disorder including ME/CFS, to join Fibromyalgia Network. Their website is www.fmnetnews.com .

 http://www.fmnetnews.com/basics-news-overall1010.php

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FROM CO-CURE.ORG

Date:    Tue, 26 Oct 2010 13:52:44 -0500
From:    kelly <kellylatta66@GMAIL.COM>
Subject: MED: About.com Interpreting Lab Tests With Fibromyalgia & Chronic Fatigue Syndrome

Interpreting Lab Tests With Fibromyalgia & Chronic Fatigue Syndrome
Adrienne Dwello

Tuesday October 26, 2010

How many times have you gotten test results in the mail and wanted to know more about what those numbers mean?  The letters I get usually just give my result and say either normal, high or low.  However, I
want to know if I'm at the low or high end of normal.  For example, is my thyroid hormone level on the low end of normal, indicating that I might benefit from a higher dose of replacement hormone?

Something new at About.com can help you figure out what those numbers mean.  It's called the Lab Test Interpreter, and it contains information provided by Harvard Medical School.  You can find it here:  http://labtestinterpreter.about.com/

Full post as well as news about treatment modalities can be found at:
http://chronicfatigue.about.com/b/2010/10/26/interpreting-lab-tests-with-fibromyalgia-chronic-fatigue-syndrome.htm .

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Date:    Thu, 28 Oct 2010 08:13:32 -0700
From:    Bruce Campbell <bruce.campbell@FLASH.NET>
Subject: NOT: New Feature Articles at CFIDS/FM Self-Help

The CFIDS & Fibromyalgia Self-Help Program has two new feature articles on its
website ( www.cfidsselfhelp.org ):

1) "Achieving Consistency"
Nine ideas for how to succeed at pacing.

2) "Coming to Terms with a Life I Didn't Plan"
A CFS patient explains how she worked through grief to learn how to live with
her illness.

A 501(c)(3) non-profit organization, the program has conducted hundreds of
self-help classes since 1998. The program's website contains information about
our sequence of three self-help courses, plus numerous articles on topics such
as coping strategies, pacing and support. In addition, there are many patient
success stories and information for family and friends.

Bruce Campbell, Ph.D., Executive Director
CFIDS & Fibromyalgia Self-Help Program
www.cfidsselfhelp.org 

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Date:    Thu, 28 Oct 2010 12:47:45 -0400
From:    Pat Sonnett <psonnett@BELLSOUTH.NET>
Subject: ACT:  IACFS/ME Recommends Writing Letters to the CDC

Dr. Fred Friedberg, President of the IACFS/ME, requests that CFS/ME professionals and patient-oriented activists write letters to the CDC to Dr. Stephan Monroe with copies to Dr. Thomas Frieden regarding the selection of a new Chief of the Chronic Viral Diseases Branch at the CDC.  See below for Dr. Friedberg's request which is posted with his permission.

Email the selecting official at CDC to urge him to select a new Chief, rather than continue with the current ineffectual leadership. The selecting official is Dr. Steve Monroe, Director of the Division of High-Consequence Pathogens and Pathology (stephan.monroe@cdc.hhs.gov).

Also, it is important to cc your letter to the CDC Director, Dr. Thomas Frieden ( txf2@cdc.gov ).

This is another opportunity for us to be heard.  Please take advantage of it.

Pat

ME/CFS & Fibromyalgia E-Newsletters by Adrienne Dellwo of About.com

http://specials.about.com/service/newsletters/chronicfatigue/1287169200.htm

http://specials.about.com/service/newsletters/chronicfatigue/1287774000.htm

Medicare Rights - Medicare Rights Releases Resource on Enrollment 

For those of you on Medicare, I would encourage you to sign up to receive this weekly source of Medicare Info.

http://www.medicarerights.org/issues-actions/medicare-watch.php

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Funny Ha Ha!!!!

This is so entertaining. We all need a good laugh - its healthy for us.  This is one of the best I've found in a while....It was in the ProHealth Newsletter some weeks ago......Enjoy!

River Dance Wannabes

http://www.youtube.com/watch?v=8LsQ5gcf_fo

Nancy Henson, Editor