Charlotte CFS/ME/FM Support Group Newsletter
for August 31, 2010
Four Viruses? The Alter XMRV Paper Arrives
http://www.forums.aboutmecfs.org/content.php?213-Four-Viruses-The-Alter-XMRV-Paper-Arrives
Read the study; Does X Mark the Spot?
http://www.pnas.org/content/early/2010/08/16/1007944107.full.pdf+html
If you do not subscribe to Dr. Bell's newsletter, you may read his most recent at:
http://www.davidsbell.com/LynNewsV7N2.htm
From: IACFSME@mail.vresp.com
Reply-to: reply-76e1f20cf1-ad8cf6c543-1497@u.cts.vresp.com
To: nmhenson@aol.com
Sent: 8/26/2010 10:15:43 A.M. Eastern Daylight Time
Subj:
FDA Proposal to Remove Midodrine from Market
Dear Members.
The U.S. Food and Drug Administration has proposed removing ProAmatine (generic:
midodrine) from the market, saying the required follow-up clinical studies
haven't been conducted. The indication for use of midodrine hydrochloride is in
the treatment of symptomatic orthostatic hypotension. A number of patients with
CFS/ME say the drug helps them.
For more information, the FDA web sites are:
www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm222580.htm
www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm222640.htm
Thank you.
Fred Friedberg, PhD
President
IACFS/ME
| The link between the retrovirus XMRV and ME/CFS
has been confirmed by the U.S. Food and Drug Administration according to two
of the RENO scientists who discovered the link. Dr. Judy Mikovits, one of the lead scientists with the Whittemore Peterson Institute for Neuro-Immune Disease in Reno, said the news is scheduled to be published in September. "There has been an issue over whether anybody could replicate our study, and it will not only confirm our findings but extend our findings . . " she said. Mikovits added that they also have new, unpublished data concerning the retrovirus, XMRV, that could lead to treatment of Chronic Fatigue Syndrome. |
Visit ME-CFSCommunity.com at: http://cfsknowledgecenter.ning.com/?xg_source=msg_mes_network
Join the ME-CFSCommunity.com to keep abreast of the latest. Once this is out, there will be new news nearly every day.
If you have limited monthly income (below $1,354 for individuals and below $1,822 for couples) and your assets are below specified limits, you may be eligible for Extra Help, a federal program that helps you pay for some or most of the costs of Medicare prescription drug coverage.
Even if your income or assets are above the limit, you may still qualify for Extra Help because certain types of income and assets may not be counted. For example, part of your earned income and the value of your house will not be counted.
Spotlight
Sound the trumpets! The long-awaited day is
finally here – chronic fatigue syndrome is being taken seriously by the medical
community!
On Monday afternoon, August 23, 2010 in their early online edition, the
Proceedings of the National Academy of Sciences
(PNAS)
published the much-anticipated research article
"Detection of MLV-related virus gene sequences in blood of patients with Chronic
Fatigue Syndrome and healthy controls"
(in PDF format).
www.healthcentral.com/chronic-pain/c/5949/118461/retrovirus/?ic=6042
Nancy Henson, Editor